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  1. amen to that

    final round of appointments, 2 new added.

    Dec 6: MRI scan
    Dec 7: app. at clinic in Duisburg (where surgery was done) to have a Dr. check the scans and tell me all is looking perfect
    Dec 9: app. at my neurologist downtown, another check on the MRI scans. more for her record than mine, but still.

    the important date is Dec 7 with the app. in Duisburg. The doctor there, who was also present during my surgery, will have the news. Good news

    from Dec 10 on.... party
  3. Originally posted by MacStripey:[..]

    amen to that

    final round of appointments, 2 new added.

    Dec 6: MRI scan
    Dec 7: app. at clinic in Duisburg (where surgery was done) to have a Dr. check the scans and tell me all is looking perfect
    Dec 9: app. at my neurologist downtown, another check on the MRI scans. more for her record than mine, but still.

    the important date is Dec 7 with the app. in Duisburg. The doctor there, who was also present during my surgery, will have the news. Good news

    from Dec 10 on.... party


    All the very very very best Kirsten!
  4. Sure everything gonna be alright !!
  5. Originally posted by MacStripey[..]

    amen to that

    final round of appointments, 2 new added.

    Dec 6: MRI scan
    Dec 7: app. at clinic in Duisburg (where surgery was done) to have a Dr. check the scans and tell me all is looking perfect
    Dec 9: app. at my neurologist downtown, another check on the MRI scans. more for her record than mine, but still.

    the important date is Dec 7 with the app. in Duisburg. The doctor there, who was also present during my surgery, will have the news. Good news

    from Dec 10 on.... party


    Grandma's having a party!
  6. it would be lovely if I could see a photo of you two celebrating together. You know...just an idea...
  7. had the MRI done this morning. the neurologist there explained the scans to me, so I can post right away, why wait until tomorrow.

    the remaining tumor has not grown. read: good news

    it still has a size of 3,2 cm (that bastard ), which is the same since after the surgery. the neurologist at the MRI office this morning showed the scans to me and told me that all looks the way it should. if the tumor should grow again (which is likely, as it's not completely removed, still sitting there watching my life day by day and listening to my thoughts... again, bastard), it will do so slowly and over years. So time is a gift, let's face it

    only now, as I'm back home, do I realize how tense I have been the past days. Even though you pretend to be relaxed and going all matter-of-fact, the moment you lay in that MRI tube and have this incredible noise hammering into your ears and straight into your head, you feel so small and weak and scared.
    When I walked out of the neurologist's office around 9am and made my way back to my car, Walk On on full volume on my ipod, I felt no sense of Beautiful Day and let's celebrate and life is so wonderful. I'm sure relieved, you bet, but all I feel right now is exhaustion. I'm too tired to bounce around and be happy. As happy as I should be, given the good news. I believe I'll get there in a few days, but today and my reaction show me how scared and tense I've truly been lately. It's coming up now. Blah.

    I've been a pain in the a*** around here to some of you in the past days, you know who you are, I left some peeved comments. I'm sorry. I'm not taking them back, it's who I am. But nonetheless I apologize.

    So there. Tomorrow morning I'll take the dvd with today's scans and drive to the clinic in Duisburg where one of the surgeons who were present on March 1st will take a look at the images. I'm calm now, as the neurologist today has already measured the tumor's size and told me all is looking good. You just need to be sure, and you need to take all of these appointments.
    Returning to the clinic in Duisburg is like returning to the Place of Hell. Even though now I'm good and alive and getting better day by day, that place still holds so many memories of fear and all, I can't begin to name what I felt there. Maybe one day will be the time to share, but not yet. Too much. Well, tomorrow will pass as well.

    bottom line: walking on. next MRI in 6 months. until then.... let's put the darkness of this topic aside and focus on the only thing that really counts: life

  8. Great to read your story ...i Hope all the best for you !!!


  9. Just a funny way to tell you how HAPPY I am
  10. Nice to hear good news , I m really happy for you
  11. today it is exactly one year ago since I had the first MRI of my head done and got the diagnosis. One year ago today my life changed. It leaves me very thoughtful today.

    Anyway. Update: the every-three-months visit at the oculist was yesterday. My field of vision has not changed, not for the better nor for the worse. This is good news. The visual nerves are both unremarkable, no process going on there. Again, good news. So I can say, after one year now, I will bury the hope that the field of vision on my right eye might ever return to a normal level again. The visual nerve obviously got damaged too much when the tumor was at its utmost size. The doctors said after the surgery the nerve might recover over some months, but now I don't believe that anymore. But as long as it stays this way, I'm dealing with it.

    next week, major blood test at the endocrinologist. in November, all results were fine except the one for the thyroid gland antibodies. Hoping that those have gone down in number (normal number of those antibodies is 30-50, the test said back then, and I had 190). Waiting for next week now.

    Basically, I think I can say physically I'm back to maybe 70 % by now. I'll never reach 100% anymore, I realized that, but 70 is alright after a year. I keep telling myself that. I'm regularly on 2 medicaments to keep the blood pressure under control, taking them daily. One of them also keeps the heart rate down and stable most of the time. The side-effects are dizzyness, tiredness, and sometimes lack of concentration. Every day is different. I never know how it will be. One day I go to a concert and all is well, the other day I can hardly face my daily work. Up and down.

    There I stand right now. In June the next MRI of the head will come up. Every 6 months, for the rest of time. How lovely However, I'm glad for every day. The remaining tumor has a size of 3cm. When the time comes that the discover it has grown again, they won't go and do surgery through my nose again, like they did last year. The next time, whenever it will be and hopefully many years from now, they will have to go through the head from top, which is far more worse than... the nightmare I already had to go through. So I'm not thinking of that. Only today

    summery: granny's walking on
  12. You ´ll never walk alone............

    Nice to hear read news !!
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Contribute to the U2 community with uploading photos or by telling us which shows you have visited.
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