BLU
Active topics
  1. Great pic !!

    Good to see you fine !!

  2. great great pic, Emiel
    you look way more positive than I am at the moment, I take you as the best example to keep going. Walk on, all my best to you, my friend
    Everyone here, thank you for your encouraging words and gestures. You keep things going
  3. Thanks Kirsten,

    Great That you take me as the best example to keep going...i know that they can do not much for me,but i enjoy every minute of life ...i got a lot of postcards from friends and family ...and i keep every one updated on Facebook. My boss Cals me 2 times a week so they know on my work how everything is going with me ...i got a lot of help from my parents and the parents of my wife. They bring me to the Hospital ..take care of the kids and do Nice things with them ....so everything get very well arround me
    I sleep normal and been not nervous ...i eat extremly well ..go cycle everyday and walk a lot ....so that's al fine ....next week Will be different so i wait and see how i feel than .

    Greetings Emiel

  4. I'm facing trouble since Thursday. It looks like radiotherapy is causing unexpected side effects on my brain. The doctor says it is extremely seldom that this happens, but obviously I'm once again lucky enough to be one of the few. Increasing waves of nausea/vertigo that turn my world upside down, headaches, insecure walking, aincreasing inbalance of spontanious breathing and stunbling heartbeat, and last but not least decrease of eyesight. As you know,my left eye is closed since the surgery last July,but the eyesight itself still is at 90%. Right eye with which I can look was at 50% when last checked by aoculist a monthg ago. Since Thursday now I get phases of up to an hour when my eyesight on both eyes completely gets lost and I can't see anything. It comes back after that but it stays worse than before,so the 90/50% are certainly not up-to-date anymore. They say it all may well be site effects of the radiation. I'm on a high dose of pills now that should lower a possible swelling of the brain and also stop the nausea. It usually is only given right after a brain surgery because it is of strong effect,but yeah. It's not helping at all yet.
    It might also be the tumour working against me again at the same time. All in all I have no choice. Radiotherapy cannot be stopped now, without it I'm lost to the tumour in any way. I only hope it is just the radiation doing its shit on me now and not the tumour on a parallel turn. In the past few days I've learned of fear again,how I am delivered to this brain crap and its immediate control about wether I live or wether I die,just like that. Very present, very scary.
    On Thursday afternoon I was feeling low and down on the inside when I was in hospital for session #15 but I thought of Emiel and his wonderful photo he posted here and his positive thoughts and his energy, and it helped me so much to get going, it did help so much. And then in the evening I got knocked down like boom and I lie flat down since then :'( I wonder why and what is about to come. I love life and I want to enjoy every day of it. Why always a kick back and fear for life, just why.
    Sorry had to let this out. Love always to you,my friends.


  5. +! Great pic indeed, and all best wishes from me too!
  6. Thanks much for this, Kirsten: lots of hard symptoms to cope with indeed. And yes, Emiel's picture is great! I hope you can both leave behind this soon enough... I am sure it is the mix of radiations + pills that is causing the problem... Time to hold on tight, once more... we hold on with you, and send you lots of love and support!
  7. Sorry Kirst to hear that .... Sure it is the radiations that make this shit ...so be patient and then will disappear
  8. That's hard to read Kirsten. As always, I'm sending my best thougts and good energies to you! Hope you feel better soon friend!
  9. Come on Kirsten we can do this !!!!
  10. Certainly hard to read as Aidan said, but I'm also certain you'll get through it as always...all we can do is send you all positive thoughts and wishes available! You'll make it Kirsten
  11. I feel fine and very well! Next friday to the hospital to talk with the oncologist! About the next Chemotherapy .....and if my blood is good enough for it! we will wait and see ...
  12. Originally posted by emiel:I feel fine and very well! Next friday to the hospital to talk with the oncologist! About the next Chemotherapy .....and if my blood is good enough for it! we will wait and see ...

    Glad to hear this - all best wishes!!
Contribute to the U2 community with uploading photos or by telling us which shows you have visited.
Contribute to the U2 community with uploading photos or by telling us which shows you have visited.
Contribute to the U2 community with uploading photos or by telling us which shows you have visited.
Contribute to the U2 community with uploading photos or by telling us which shows you have visited.