Emiel, good to hear things are looking better. All fingers crossed you'll get better by every day. Tough road still ahead but you'll make it. One step after another.
Over here, things are tough. My body gets weaker. It is either still the aftermath of the radiotherapy on the brain, or the tumor is not responding but effecting my brain even more. One way or the other. I collapsed several times since two weeks, more and more often. Vertigo comes from one second to the next without warning, sending me to my knees with the world spinning around me, for seconds, sometimes minutes. Indescribable.
Called the professor who did the surgeries, he said I need to get through this until the control MRI is done on August 5 or better said untril he takes a look at that scan then on August 12. Waiting and hoping. It feels no good but then there is no alternative tghan to wait for the control scan.
It is difficult to stay positive. It always seems so easy but truth be told fear has dragged me down more than once by now. Why can't this desease be in my foot or hand, I'd cut it off and be good. The head is a feckin' place to be sick at. Sounds stupid and I know it and I apologize, but my fears grow with every day. I want and need the MRI scan to know if I'll have more time or not, on the other hand I wished that day of knowloedge wouldn't come at all, I fear it.
We very much cross our fingers, Kirsten, hoping there will be OK news on August 12... Until then, I really hope that bastard of a tumour will stay put... you'd very much deserve it! All best wishes - always in my thoughts, too...
I know it's hard, but you have to ignore your mind now. If you pay too much attention to it, fear and sadness you grow on you. Listen to your heart and be sure you have the power to feel better, and this will help you to get through this moment.
i pray for you Kirsten and i hope that the MRI give you hope...tommorow i get a radioactive scan of my liver function so they can deside if the can operate me or not ...friday i get my next Chemotherapy and i will get bloodtransfusion because my iron is very low ..that's one of the reasons i am so tired...next week i get the result of my liver oncoloog ...
at this point i get a little tired of al the hospital visits i make ...but it is for my own good! so we stay positive how hard it is sometimes....
No chance to operation ...3 new spots discovered on the liver in the healthy part what they wanted to use to remain during the operation ...a new setback but we wait what the oncolog tell's us next week how to go on