"The LORD is my shepherd; I shall not want.
He makes me to lie down in green pastures; He leads me beside the still waters.
He restores my soul; He leads me in the paths of righteousness
For His name’s sake.
Yea, though I walk through the valley of the shadow of death, I will fear no evil;
For You are with me; Your rod and Your staff, they comfort me.
You prepare a table before me in the presence of my enemies;
You anoint my head with oil; My cup runs over.
Surely goodness and mercy shall follow me All the days of my life;
And I will dwell in the house of the LORD Forever."
very sad and upsetting to read this. you have my hope and prayers.
my advice would be home, we helped care for my neice who had MLD she was only 2 years of age and had a very short life expectancy she was very brave throughout her illness, however having her at home split between me and my wife and her own home we were able to give her as full a life as possible, we were offered various options hospital and hospice care but there was no substatute for the love and care she recieved from us. we just adapted her level of care and the house to fit round her needs
sadley she passed away a few months before her 3rd birthday, we miss and love her dearly
sehr traurig und erschütternd zu lesen. Sie haben meine Hoffnung und Gebeten.
Mein Rat wäre zu Hause sein, halfen wir Sorge für meine Nichte, die MLD sie war nur 2 Jahre alt war und hatte eine sehr kurze Lebenserwartung war sie sehr tapfer während ihrer Krankheit, aber mit ihr zu Hause Spaltung zwischen mir und meiner Frau und ihr Hause konnten wir sie so umfassend wie möglich das Leben, wir waren verschiedene Optionen angeboten Krankenhaus und Hospiz zu geben, aber es gab keine substatute für die Liebe und Fürsorge sie von uns erhalten. wir einfach angepasst ihr Maß an Sorgfalt und das Haus zu Runde passen ihre Bedürfnisse
sadley sie starb wenige Monate vor ihrem Geburtstag 3. vermissen wir lieben sie sehr
Wenn Sie mehr Informationen über MLD hier ist der Link.
If you want, you can delete this Thread. But maybe some other peoples want use this.
It was a really hard day - The small white coffin - I'll never forget that.
But so many people were there: The whole Family, the friends and teacher's from Mark's school. The janitor from the scholol also was there. The last song Mark heard forever was "Ave Maria". This was so hard. This was my last visit to a church...forever!
My friend and his wife will move to a new apartment. Too many memories in the old home.
Thanks you a lot for Support, so, need some time and now more beer.
Stop apologizing for your "bad" (?) English, we all understand you perfectly. Don't worry about that.
I'm having some hard times (nothig comparable with the loss of a 7 years old child, of course) so I can understand how you feel. Walk On, it's all I can say
I meant to comment here earlier, in fact when you started this topic at all, but then real life was hitting me as well so I didn't come back here until now....and to read what has happened makes me really really sad. My condolences and deepest sympathies it must be unbearable to see a child go.
I would ask to not close this topic, somehow it might be the right place to.... share thoughts, experiences, anything on this topic, you know.... just a feeling. I don't know.
