Originally posted by MacStripey:On August 12 I will know then,as I take the MRI scans to the radiologist for talks then.
(just kidding on that, I know it will be a long time of recovery, but still 
)
Originally posted by emiel:nice read Kirsten ..tommorow the next Chemo and then over two weeks a MRI scan to see if the Chemo does it's work ....so that would be very exciting moment....
Originally posted by MacStripey:Update via mobile from the couch at home.
First: Emiel, it is really good news hearing about your process. I know it is a hard time around the chemo, but you will do it. My fingers are crossed day bay day for you. You will make it. You are strong!! xxx
Here, I'm facing the aftermath of the radiotherapy. I will never in my life say it is easy going,like I thought before it would be,remember, Olof? I was wrong.
My body is back down to zero,the walk from bed to bathroom and back is all I can do at the moment. Weakness, nausea, sick in the stomach, heart out of rhythm, the reducing of the high cortison medicine causes incredible physical pain in bones and muscles as side effects - every day something else. While during the actual radiotherapy sessions my cut-short hair from the July surgery finally began to grow again, it now starts to get off here and there where the radiation hit my skin,it seems. wth.
Complaining, me? Well yes...for a change.
The plan given from the doctors: blood tests every 4 weeks (right now,only slight disorder in liver,said to be expected due to radiation effects).
The next 6 weeks the radiation will still work on my whole system,so physical standstill for me,laying down completely. After that,trying to get on my feet again. Hah,watch out,world.
On August 5, first MRI scan of my brain to check if the radiotherapy will have had any effect on the remaining tumor. If it will have, I will have one of the happiest moments of my life. If not - that thought is no option. On August 12 I will know then,as I take the MRI scans to the radiologist for talks then.
"short update" again :-)
Love you, guys <3
ps: for the insiders,my personalized plate was finally put up at the S04 arena. My dad went and saw it for me. U2 and my name now part of the holy temple ;-)
pps: Dortmund will beat Bayern, hear my words :-D
ppps: the day after radiotherapy ended, May 3, I lay on the couch and realization hit me that I had made it through it all for good, and I felt a sudden urge to celebrate, and I put in my earplugs and turned on my iPod,something I hardly do since surgery in January as my head still gets irritated by any rounds, and... I turned on the bootleg of Brussels 2010-09-23, my final U2 show, and I listened to the whole show, I went back there completely and it got me right away and for the first time since I went to hospital in January I allowed myself to get weak enough to let go and I cried like a babyI did and Sh admit it shook me to the bone, but it was pure joy and love and happiness and THAT is what U2 do :-) happy happy old fat lady over here. Had to share :-) thanks U2 <3
sorry for any typo or mis-spelling. I have the excuse of a disabled idiot
Originally posted by emiel:well this is what i did when i heard i have Cancer ....i put it in a invisible suitcase put it next to me.... and decided to leave the cancer
in de suitcase and go on with the life i have now!!! that's why i stay so positive ...i just want to WALK ON the time that is stil there ! we just don't know when it ends ...my other point is and some people think it's wierd ..i am not afraid to die ..when it's my time i got to go...end of the story...it sounds heard for some others but that is how i think ..when they can not help me anymore it will take me a view months but when it works it could be 2 years and the nurse yesterday said to me it could be 5 or more ...we will see what the future brings ... i life right now and i feel pretty good but every day is different ....this is what i got to do i leave the suitcase all behind..and walk on!
